Health

How to Support a Child Diagnosed with PANS or PANDAS

When a child suddenly begins showing signs of obsessive-compulsive behaviors, severe anxiety, or emotional outbursts seemingly overnight, it can leave parents feeling shocked and helpless. This could be more than just a psychological issue — it might be a medical condition called PANS or PANDAS. These conditions are complex, misunderstood, and often misdiagnosed. However, with proper support, holistic care, and a multidisciplinary approach, children can recover and thrive. That’s where resources like Level Up Wellness Group come into the picture, offering guidance, therapy, and hope to families navigating this journey.

What Are PANS and PANDAS?

PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) and PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) are conditions characterized by the sudden onset of neuropsychiatric symptoms in children. These can include:

. Severe anxiety or depression

. Obsessive-compulsive behaviors

. Tics or unusual motor movements

. Restrictive eating

. Behavioral regression

. Sleep disturbances

. Sensory sensitivities

PANDAS specifically occurs following a streptococcal (strep) infection, while PANS can be triggered by other infections, inflammation, or even environmental factors.

The Importance of Early Recognition

Because the symptoms of PANS/PANDAS can mimic psychiatric disorders such as OCD, ADHD, or autism spectrum disorders, many children are misdiagnosed or go without proper treatment for years.

Signs to Look For:

. Your child suddenly develops irrational fears or rituals

. Symptoms begin abruptly, not gradually

. There’s a known recent infection

. Your child becomes aggressive, has emotional meltdowns, or regresses academically

Early recognition and diagnosis can drastically improve the chances of successful treatment.

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Understanding the Root Causes

Unlike traditional psychiatric conditions, PANS and PANDAS are believed to be triggered by an immune system malfunction. In these cases, the body mistakenly attacks brain tissue, especially in the basal ganglia, which controls movement and behavior.

Possible causes and triggers include:

. Streptococcus infections (strep throat)

. Mycoplasma, influenza, Lyme disease

. Environmental toxins

. Gut imbalances or inflammation

. Stress or trauma

Why a Multidisciplinary Approach Works Best

Because these conditions affect so many systems in the body — immune, neurological, emotional, and behavioral — a single-treatment approach is rarely enough. This is where a multidisciplinary model becomes essential.

A Comprehensive Care Team May Include:

. Pediatricians or Family Doctors – For initial diagnosis and infection control

. Psychiatrists/Psychologists – For OCD, anxiety, or mood support

. Neurologists – To rule out other brain-based disorders

. Immunologists – If an autoimmune component is involved

. Occupational Therapists – For motor or sensory challenges

. Naturopathic Doctors or Functional Medicine Practitioners – For gut and nutrition support

. Family Therapists – To help the entire household manage stress

Organizations like luwg.ca understand this complexity and provide integrated services under one roof, reducing the burden on already overwhelmed families.

Holistic Strategies for Managing PANS and PANDAS

Beyond medical intervention, families often explore holistic and lifestyle-based therapies to support their child’s healing. Here are some of the most effective:

1. Anti-inflammatory Diets

Reducing inflammatory foods like sugar, gluten, and dairy can help calm the immune system and reduce flare-ups. Many families follow:

. Paleo or AIP diets

. Gluten-free, casein-free (GFCF) diets

. Low-oxalate or low-histamine diets (based on individual testing)

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2. Supplements

While you should always consult a professional, common supplements that support brain and immune function include:

. Omega-3 fatty acids

. Probiotics

. Zinc, magnesium, and B vitamins

. Curcumin or other anti-inflammatory herbs

3. Detox Support

Some children with PANS/PANDAS have difficulty detoxifying naturally. Therapies like Epsom salt baths, sauna sessions (for older children), and gentle liver support can be beneficial.

4. Therapies for Emotional Regulation

. Cognitive Behavioral Therapy (CBT)

. Exposure and Response Prevention (ERP) for OCD

. Play therapy for younger children

. Mindfulness and breathing techniques

5. Sleep Hygiene

Chronic sleep disturbances are common. Supporting natural circadian rhythms with routine, reduced screen time, and magnesium can help improve rest.

Supporting the Whole Family

These conditions don’t just affect the child — they take a toll on the entire household. Parents often report:

. Emotional burnout

. Financial strain from medical bills

. Sibling jealousy or fear

. Disrupted school and social life

It’s critical that parents seek support for themselves too, whether through counseling, parent groups, or wellness centers that offer family-based care like Level Up Wellness Group.

How to Advocate for Your Child

1. Document Everything

Keep a symptom journal, track flares, food intake, and environmental triggers. This helps medical professionals spot patterns.

2. Request Specific Testing

Don’t be afraid to ask for strep titers, autoimmune panels, or referrals to specialists.

3. Educate School Staff

Teachers and administrators may not be familiar with PANS/PANDAS. Providing educational materials and a treatment plan can make a big difference.

4. Build a Trusted Care Team

Choose professionals who believe you and understand the complexity of these conditions. Trust and communication are key.

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Hope Through Healing: Realistic Expectations

While recovery timelines vary, many children with PANS/PANDAS improve significantly with the right approach. Some recover fully; others may need long-term management during flare-ups.

The journey can be slow, nonlinear, and frustrating — but it’s also filled with hope. By building a comprehensive care plan and focusing on both the physical and emotional healing of your child, you’re giving them the best possible chance for success.

Centers like Level Up Wellness Group specialize in these types of complex pediatric conditions. Their integrative approach ensures your child receives care for both symptoms and root causes — and that you, the parent, feel supported every step of the way.

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